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Pharmacare won’t help Canadians with rare disorders

Published

6 months ago

6 minute read

From the MacDonald Laurier Institute

By Nigel Rawson and John Adams

Canadians with rare disorders will be even worse off if NDP’s parliamentary blackmail works

Last month the federal NDP convention in Hamilton voted unanimously to force the Liberals to introduce a single-payer universal pharmacare program or see the current “confidence-and-supply” deal canceled. Will universal government-run pharmacare benefit Canadians with rare disorders? We fear not.

Canadians with such disorders are already disadvantaged compared with sufferers in other countries. Fewer specialized drugs are launched in Canada than in the United States and Europe. Those that are get approval for marketing about a year, on average, after they do there.

That’s not because Health Canada takes longer to review new medicines. The process takes about the same time in the three places. Rather, delayed approval is likely due to manufacturers submitting later to Health Canada because federal, provincial and territorial hostility towards the industry has made our biopharmaceutical market less attractive.

Approval doesn’t mean government drug plans will pay for a drug, however. Further government-created barriers impact all Canadians, but particularly those with rare disorders who want access to novel drugs for their unmet or poorly met health needs. As a consequence, what gets listed in government drug plans varies widely, leading to a postal code lottery.

In a set of articles published over the summer by the Macdonald-Laurier Institute, we discuss the several obstacles patients and their families face as they try to gain access to new or expensive innovative therapies. They include: the lack of federal incentives for developers to submit new medicines to Health Canada; health technology assessment that is neither accountable, independent nor transparent and makes recommendations about which drugs to cover in public drug plans to governments; and price negotiations between government drug plans and manufacturers.

Even when drug developers clear these government-created barriers, public drug plans are under no obligation to add the approved medicines to their benefit lists. Too often governments focus only on drug costs and ignore the broader benefits effective drugs can bring, not only to the health and well-being of patients and their families, but also to other parts of the health system, to the economy and to society at large. If a new drug reduces doctor or emergency visits or hospitalizations or helps a person get back to work, those benefits typically are ignored by our drug assessment system.

The federal government made matters worse over the past six years by planning to drastically reduce drug prices by regulatory order, not negotiation. This caused considerable uncertainty among developers, resulting in even fewer new drugs being submitted for marketing approval here than in the U.S. and EU.

Proponents plainly want a lowest-common-denominator government-run public plan that would crowd out private plans, which over two-thirds of Canadians currently rely on for drug access.

Despite the federal government committing $1.5 billion over three years to “increase access to, and affordability of, effective drugs for rare diseases to improve the health of patients across Canada,” its initiative is not comprehensive. So far, Canada has neither a government-endorsed national rare disorder strategy nor an Orphan Drug Act providing incentives to developers to launch orphan medicines in Canada. Most other developed countries have both.

Patients’ organizations have stepped in where governments have failed to act and proposed a Canadian strategy that would include incentives and funding to encourage developers to launch drugs in this country and cut through the barriers we have described to provide timely access to the many innovative treatments on the research horizon. For example, access to breakthrough drugs could be allowed as soon as Health Canada says they are safe and effective, even as other administrative boxes are checked and prices negotiated. Other countries use this approach.

Canadians afflicted with any of the 11,000 or so known rare disorders have significant unmet needs. Fewer than five per cent have any treatment beyond symptom relief or palliative care. The last thing these people need is for governments to ration innovative drugs even more than they already do or to force even deeper price cuts from drug developers in order to pay for universal pharmacare that covers only basic medicines.

Canadians with rare disorders almost certainly will be even worse off if the NDP’s parliamentary blackmail works.

Nigel Rawson is an affiliate scholar with the Canadian Health Policy Institute and a senior fellow with the Macdonald-Laurier Institute, as is John Adams, co-founder and CEO of Canadian PKU and Allied Disorders Inc.

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Addictions

City of Toronto asks Trudeau gov’t to decriminalize hard drugs despite policy’s failure in BC

Published on May 2, 2024

By

From LifeSiteNews

By Clare Marie Merkowsky

“Criminalizing the possession of drugs for personal  use leads to discrimination and stigma, and contributes to people hiding their drug use from their  physicians, friends, family, colleagues, and community”

The City of Toronto is asking Prime Minister Justin Trudeau’s government to decriminalize hard drugs. 

In a March letter, Toronto city officials appealed to the Trudeau government to legalize all quantities of crack, cocaine, heroin, meth, and other hard drugs, despite warnings that it will bring increased chaos and violence to the city. Its reasoning is that people look askance at drug abuse and drug abusers, who then attempt to hide their habit.  

“The evidence demonstrates that criminalizing the possession of drugs for personal  use leads to discrimination and stigma, and contributes to people hiding their drug use from their  physicians, friends, family, colleagues, and community,” the document claimed.  

The letter, penned by Medical Officer of Health Dr. Eileen de Villa, City Manager Paul Johnson, and Chief of Police Myron Demkiw requested that the Trudeau government decriminalize hard drugs for young people as well as adults. The application places no limit on the quantity of drugs which would be legally obtained. 

Toronto is already seeing a rise in crime since the election of Toronto mayor Olivia Chow. Canadians have pointed out that Toronto is dealing with several issues, without adding the decriminalization of hard drugs,  

“Trudeau must reject Toronto’s application to allow public use of crack, cocaine, heroin, & other hard drugs,” Conservative Party leader Pierre Poilievre wrote on X, formerly known as Twitter. 

“His dangerous policy cannot bring the same chaos, death & destruction to more Canadian cities,” he added.  

Poilievre further explained that Canadians have already seen the dystopian effects of the decriminalization of hard drugs in British Columbia, which “has caused chaos in hospitals, playgrounds, parks, and public transport.” 

READ: British Columbia should allow addicts to possess even more drugs, federal report suggests

Beginning in early 2023, Trudeau’s federal policy, in effect, decriminalized hard drugs on a trial-run basis in British Columbia.    

Under the policy, the federal government began allowing people within the province to possess up to 2.5 grams of hard drugs without criminal penalty, but selling drugs remained a crime.  

The province’s drug policy has been widely criticized, especially after it was found that the province broke three different drug-related overdose records in the first month the new law was in effect.  

Last week, BC Premier David Eby finally admitted that the province’s ‘safe supply’ program was a failure and called on the Trudeau government to reverse the program. However, Trudeau has yet to respond to the province’s appeal for help.  

“Safe supply“ is the term used to refer to government-prescribed drugs that are given to addicts under the assumption that a more controlled batch of narcotics reduces the risk of overdose. Critics of the policy argue that giving addicts drugs only enables their behavior, puts the public at risk, and disincentivizes recovery from addiction. Where “safe supply” has been implemented, it has not reduced the number of overdose deaths. It has sometimes even increased it. 

The effects of decriminalizing hard drugs in parts of Canada have been exposed in Aaron Gunn’s recent documentary Canada is Dying, and in the British Telegraph journalist Steven Edginton’s mini-documentary, Canada’s Woke Nightmare: A Warning to the West.    

Gunn says he documents the “general societal chaos and explosion of drug use in every major Canadian city.”    

“Overdose deaths are up 1,000 percent in the last 10 years,” he said in his film, adding that “[e]very day in Vancouver four people are randomly attacked.”  

Even Liberals have begun admitting that Trudeau’s drug program has not helped addicts but only added to their problems.   

In April, Liberal MP Dr. Marcus Powlowski testified that violence from drug users has become a problem in Ottawa, especially in areas near the so-called “safe supply” centres which operate within blocks of Parliament Hill.     

“A few months ago I was downtown in a bar here in Ottawa, not that I do that very often, but a couple of colleagues I met up with, one was assaulted as he was going to the bar, [and] another one was threatened,” said Powlowski.    

“Within a month of that, I was returning down Wellington Street from downtown, the Rideau Centre, and my son who is 15 was coming after me,” he continued. “It was nighttime, and there was someone out in the middle of the street, yelling and screaming, accosting cars.”   

RELATED: Liberal MP blasts Trudeau-backed ‘safe supply’ drug programs, linking them to ‘chaos’ in cities

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Addictions

British Columbia to re-criminalize hard drug use in public after massive policy failure

Published on May 1, 2024

By

From LifeSiteNews

By Clare Marie Merkowsky

British Columbia premier David Eby announced that his province plans to re-criminalize hard drug use in public spaces after its decriminalization last year led to widespread social disorder.

British Columbia is asking the Trudeau government to roll back its drug decriminalization program after increased violence and continued overdoses.  

On April 26, New Democratic Party (NDP) premier of British Columbia David Eby announced that he is working with Prime Minster Justin Trudeau’s federal government to re-criminalize drug use in public spaces, including inside hospitals, on transit, and in parks. British Columbia, under permission from the Trudeau government, had decriminalized such behavior in 2023.

“Keeping people safe is our highest priority,” Eby explained in a press release. “While we are caring and compassionate for those struggling with addiction, we do not accept street disorder that makes communities feel unsafe.”  

“We’re taking action to make sure police have the tools they need to ensure safe and comfortable communities for everyone as we expand treatment options so people can stay alive and get better,” he continued. 

Under the new regulations, police would be given the power to prevent drug use in all public places, including hospitals, restaurants, transit, parks and beaches.   

However, drug use would remain legal at “a private residence or place where someone is legally sheltering, or at overdose prevention sites and drug checking locations.”  

Eby’s concerns over drug use were echoed by Minister of Public Safety and Solicitor General Mike Farnworth who said, “Our communities are facing big challenges. People are dying from deadly street drugs, and we see the issues with public use and disorder on our streets.”   

“As we continue to go after the gangs and organized criminals who are making and trafficking toxic drugs, we’re taking action now to make it illegal to use drugs in public spaces, and to expand access to treatment to help people who need it most,” he promised.   

Under the policy, the federal government began allowing people within the province to possess up to 2.5 grams of hard drugs without criminal penalty, but selling drugs remained a crime. 

While British Columbia has not yet indicated it plans to re-criminalize possession, its decision to clamp down on public drug use presents a major departure from its previous tactics of continually liberalizing its attitude toward narcotic use.

Since being implemented, the province’s drug policy has been widely criticized, especially after it was found that the province broke three different drug-related overdose records in the first month the new law was in effect. 

The effects of decriminalizing hard drugs in various parts of Canada has been exposed in Aaron Gunn’s recent documentary, Canada is Dying, and in U.K. Telegraph journalist Steven Edginton’s mini-documentary, Canada’s Woke Nightmare: A Warning to the West.   

Gunn says he documents the “general societal chaos and explosion of drug use in every major Canadian city.”   

“Overdose deaths are up 1,000 percent in the last 10 years,” he said in his film, adding that “[e]very day in Vancouver four people are randomly attacked.”  

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