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Ottawa to spend $1.5 billion to improve access to drugs for rare diseases

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Minister of Health Jean-Yves Duclos speaks during a news conference in Ottawa, on Friday, March 10, 2023. The federal government says it will spend up to $1.5 billion over the next three years to improve access to new drugs used to treat rare diseases.THE CANADIAN PRESS/Justin Tang

Montreal (CP) – The federal government says it will spend up to $1.5 billion over the next three years to improve access to drugs used to treat rare diseases.

Health Minister Jean-Yves Duclos says up to $1.4 billion of that money will be used to help provinces and territories expand coverage of new and existing drugs that treat rare diseases.

The federal government says it wants to create a list of new and emerging drugs for rare diseases that would be covered in a similar way by all provincial and territorial health insurance plans.

Another $52 million will be used to gather evidence on the safety and effectiveness of these drugs as well as for research on diagnostic tools and creating a clinical trials network.

And $33 million will go to Indigenous Services Canada to support eligible First Nations and Inuit patients with rare diseases

The government says one in 12 Canadians has a rare disease, and that innovative treatments for those diseases can cost between $100,000 and $2 million per year.

This report by The Canadian Press was first published March 22, 2023.

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Health Foundation commits $325,000 to support child, adolescent mental health

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Foundation donors provide furnishings, supplies for program for ages 13 to 17

Thanks to Central Alberta donors, the Red Deer Regional Health Foundation is supporting Step Up Step Down, a program helping youth aged 13 to 17 who have complex mental health challenges.

Step-Up Step-Down will find a new home in the Centre of Excellence, described as a centre for “healing, recovery, and prevention” being built at Red Deer Polytechnic.

“We thank our generous donors for supporting the Foundation’s greatest needs, which allows us to dedicate funds to help young people and families in our community,” says Manon Therriault, Chief Executive Officer of the Red Deer Regional Health Foundation.

Funds raised by the Foundation will provide a fully furnished, equipped and supplied environment to allow staff to provide timely recreational, therapeutic, and extracurricular activities to the youth in care. Funded items include furnishings, equipment, and supplies for the kitchen, bedrooms, sensory and therapy rooms, classroom, living room, gym, outdoor spaces, and indoor activity spaces.

The move into the Centre of Excellence will allow expansion of the Step Up Step Down program up to 16 beds from the current 5 beds and allow the program to provide intensive, comprehensive, individualized clinical services to youth in a live-in and community setting.

Step Up Step Down will support approximately 50-75 live-in treatment families, along with 100 intensive outpatient families per year, reducing stress on the Emergency Department and Pediatric Psychiatric units at the Red Deer Hospital. The facility will serve youth and families from all areas of the Central Zone.

About Red Deer Regional Health Foundation

The Red Deer Regional Health Foundation is a fundraising organization for Alberta Health Services Central Zone, with a mandate to raise and disburse funds for programs, services, and the purchase of medical equipment.

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Ruling clears way for Purdue Pharma to settle opioid claims, protect Sacklers from lawsuits

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