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Health

Central Alberta family desperate for a miracle… Looking for a hero

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This post has been submitted by the mother of a young Central Alberta father.  He moved to Calgary years ago to be closer to medical care.   His wife grew up in Sylvan Lake and Lacombe.  Together they’re raising 2 children and unfortunately their future is uncertain.  

From Julie. 

You may or may not have seen a desperate plea from a Central Alberta family trying to save a loved one’s life.  This is the kind of situation that requires a really large number of people to help out.  You never know who’s going to step forward and become someone’s hero.  The key is, they have to know about the situation before they can act on it.  So.. here’s a bit of information about this

Alex’s Journey

Having a baby is supposed to be a wonderful time in your life. Alex was born looking healthy; however, it all went wrong for him at 22 months of age.

After being rushed by his Father and I by car to our nearby city hospital, Alex was hospitalized for 5 days with a 105 degree fever, which nothing would bring down. Alex was in so much pain, screaming a blood curdling sound that made you think someone was murdering this poor baby slowly.

Once at hospital he was whisked away to try to identify the problem. They told us he was a mess inside and needed to be airlifted to Sick Children’s Hospital. Once there it became a series of surgeries and a lengthy hospital stay. His kidneys were being affected by a blockage he had developed.

By age four he lost one kidney and again needed several hospital visits and surgeries to help save his other kidney. The doctors explained that Alex has Chronic Renal Failure and would eventually need a kidney transplant. At age 8 we almost lost him again due to a potassium overload in his remaining kidney that gradually slowed his heart dangerously. We made another trip to Sick Children’s Hospital to get his levels back down before his heart stopped.

Through all these hardships Alex always remained a tough little guy. Now as a 29-year-old with a loving wife and 2 little ones, the time has come for our son and he is in need of a kidney.

My name is Julie, I am his mother and I have said from the beginning of this journey that I will give my kidney. That being said, it would be wise to have more donors that are willing as well to help him have a greater chance of success. His older brother has also volunteered, so please help us give Alex and his family a happy, healthy life.

Julie (mom)

If you have Blood Type O and this something you could do, our family would be so grateful to have the chance to keep him in our lives and give him the opportunity to watch his children grow up. Anyone can be tested to see if they are a match. You will need Alex’s full name so please visit the Facebook Group we have set up and reach out to our admin/s. https://www.facebook.com/groups/708888052863495/

To Get Tested: 403 944 4635

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Canada’s First Female Astronaut coming to Red Deer for Health Fundraiser

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From the Red Deer Regional Health Foundation

The world’s first neurologist in space is coming to Red Deer

The Red Deer Hospital fundraiser also features comedians from CBC Radio’s “The Debaters”

Red Deer Regional Health Foundation is pleased to announce a new event, The Lunch Box Experience, featuring three of Canada’s brightest stars, all coming together over lunch to raise funds for critical equipment for Red Deer Regional Hospital Centre.

Dr. Roberta Bondar, Canada’s first female astronaut and first neurologist in space, will be the keynote speaker on Monday, September 23, 2019 at Cambridge Red Deer Hotel & Conference Centre.  To motivate and inspire audiences, Dr. Bondar draws on her remarkable depth of expertise as an astronaut, physician, scientific researcher, author, and leader.

This is Dr. Bondar’s first visit to Central Alberta, and may be your only chance to experience this extraordinary woman in person.

 

Also performing are Erica Sigurdson and Dave Hemstad, comedians both regularly featured on CBC Radio’s smash hit The Debaters.  After lunch you’ll enjoy hysterical standup from both Erica and Dave, plus an episode of witty debater-style banter that will have you in stitches!

Tickets are $125 per person or table of 6 for $700; includes a unique lunch and are available now.

The Lunch Box Experience, formally part of the Red Deer Festival of Trees event line-up (Festival Business Lunch) is a fresh, new business networking opportunity.

Proceeds from this event will go towards ceiling-mounted patient lifts at Red Deer Regional Hospital Centre.

For more information, tickets, or sponsorship opportunities, please visit

The Lunch Box Experience:  A Red Deer Hospital Fundraiser

WHEN:     Monday, September 23, 2019

11:00am – 1:30pm

Cambridge Red Deer Hotel & Conference Centre

 

 

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Health

Health Canada announces changes aimed at dropping prices of patented drugs

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patented drugs

OTTAWA — The federal government is overhauling the way it regulates the cost of patented medicines, including ending comparisons to the United States — changes that Canada’s health minister is billing as the biggest step towards lower drug prices in a generation.

Health Canada’s long-awaited amendments to patented medicine regulations, unveiled Friday, include allowing the arm’s-length Patented Medicine Prices Review Board to consider whether the price of a drug reflects the value it has for patients. 

The list of countries that the quasi-judicial board uses to compare prices and gauge its own levels will no longer include the U.S. and Switzerland, both of which are home to some of the highest drug prices in the world.

That’s a category that has also long included Canada, something Health Minister Ginette Petitpas Taylor said she’s determined to change.

“If we look at their health care system, and we also look at the economies … it is really hard to compare their health care system to what we have here in Canada,” Petitpas Taylor said in an interview.

“When we changed the basket of countries, we changed them because we wanted to make sure could compare ourselves to similar jurisdictions that have similar health care systems and also similar populations.”

Jane Philpott, Petitpas Taylor’s predecessor in the portfolio, announced in May 2017 the government was embarking on a series of consultations on a suite of proposed regulatory changes related to the drug prices board.

Philpott said the prices review board — first created 30 years ago to ensure companies do not use monopolies to charge excessive costs — was limited in its ability to protect consumers from high drug prices.  The government expressed at the time it hoped to have the new regulations in place no later than the end of 2018.

It has taken a long time for the final changes to be put in place, Petitpas Taylor acknowledged, but she said that’s only because the government wanted to ensure it consulted with all industry stakeholders, patient groups, and people who worked in the field.

Former Bank of Canada governor David Dodge was brought on as a third-party reviewer to conduct a cost-benefit analysis, said Petitpas Taylor, who anticipates the amendments announced Friday will save Canadians approximately $13 billion over 10 years on patented drug costs.

“We took our time, we did our due diligence,” she said. “At the end of the day, as Canada’s health minister, my number 1 priority is making sure that medication is available for all Canadians and when we say that Canada’s among the top three countries that pay the highest drug prices in the world, that’s just not acceptable.”

The review board now has the tools and information it needs to meaningfully protect Canadian consumers from excessive prices, board chair Dr. Mitchell Levine said in a statement.

The board hopes to have constructive talks with partners and stakeholders in coming months to make the necessary changes to its guidelines and put the regulatory amendments into effect, he added.

Petitpas Taylor called the changes a “huge step” towards a national pharmacare plan — the public, single-payer system of drug coverage Prime Minister Justin Trudeau has promised to pursue.

NDP Leader Jagmeet Singh, whose party appears poised to make its own proposal for a national plan a central component of its election campaign, dismissed Friday’s announcement as little more than a stall tactic.

“The best way Canada can lower the price of drugs is well documented: buying them in bulk using the negotiating power of a 37-million-person single-payer pharmacare plan,” Singh said in a statement.

“But big pharmaceutical and insurance companies don’t want that, so after meeting with them more than 700 times since 2015, Trudeau’s Liberals are stalling pharmacare, and therefore making life easier for big pharma.”

Innovative Medicines Canada, which represents the pharmaceutical industry, warned in a statement that the regulatory amendments would limit the access of Canadian patients to new, cutting-edge treatments, and would also discourage investment in Canada’s life science sector.

“Our fear is that patients will be worse off,” said IMC president Pamela Fralick.

John Adams, the volunteer chairman of the Best Medicines Coalition, a non-profit organization representing 28 national patient organizations, said Friday that he shares the concerns that patients will be adversely affected.

“If one drug developer decides not to come to Canada or to withdraw from Canada, Canadian patients will suffer and possibly die prematurely,” he said in an interview.

Adams accused Ottawa of ignoring input from patient groups, and said one of the key issues is that the government hasn’t examined drug access in the countries in the new basket over the past 15 years compared to Canada.

The list now includes Germany, Japan, Sweden, the U.K., Italy, Belgium, Spain, the Netherlands, Australia, France and Norway. The former list included the U.S., Switzerland, Germany, Sweden, the U.K., Italy and France.

—Follow @kkirkup on Twitter

Kristy Kirkup, The Canadian Press


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august, 2019

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